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MS JOURNAL

Where did the summer go?

Well that was quite a summer!

I am very thankful for the technology that created smart phones otherwise I wouldn’t be able to go back and remember what I did all summer!  I found a few pictures, of course had to relearn how to upload them !

 

Sometime in April or May I had a mild relapse, honestly sometimes I think I know so little about this disease.   So my GP suggested a work schedule that while still working half time, would allow me rest days and a shorter work day overall.  I think it made a huge difference overall, and I’m starting back to 4 days a week with a break on Wednesdays, and a slightly longer day.

While the summer weather was fantastic for this area, hot and sunny to the point where we had elevated fire bans in August, it was too much for this body.  Thank goodness for air conditioning.  At home, at work, in the car, without it, I doubt I would have functioned as well as I did.  I even went so far as to request a cooling vest prescription and I’m checking out whether or not it is covered.

Some symptoms can be brought on by elevated body temperatures, well any of them really, but the ones that get me are pain behind my eyes, migraines, my right hand doesn’t want to work, and my arm feels like I have a twenty five pound weight attached to it.  Some stuff I don’t really even think about otherwise I wouldn’t get out of bed.  Depression is also part of it, almost like a cycle, I overdo it, get fatigued, eye pain, migraine, sleep for 24 hours, brain fog, and get weepy, and if it’s too hot, the time it takes for me to go downhill shrinks.   I think those who have MS will understand this, or any disease affected by inflammation, or a brain that skewers what it needs to fight.

One of the most enjoyable purchases that Chris made this summer was a lovely boat,  21 feet, big enough to go fast, small enough to take from one lake to another.  Muskoka has lots of lakes.  So this is something we can enjoy for many years!

I haven’t posted for some time, and I really need to get back on the planet and be more regular.  

By Sarah Lomas

I have my eyes wide open to catch all my dreams. MSWarrior! Widowed and then some, proud mom of two fantastic kids. Wear two hearing aids and primarily lip read. Always looking for new things to to try.

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