MS Rant – Do not read

Old steamship mail boat and passenger boat for Muskoka Lakes
Ready to cruise?

Well I don’t know if it is a flare from the heat, or a relapse, or what, I don’t even care about that part, I just want my body back. New symptom – the ms hug – it does seem to subside some after moving about.   Old symptoms – brain freeze- I know I am awake, but can somebody tell my brain how to talk?  Increased muscle weakness in hips and right leg -just progression? or is my brain not talking to these body parts? Facial twitching – had it before, but now I think I am playing the part of Bewitched, my nose twitches lol.  Bowels slower than mud, bad comparison, bladder not so quick either. Did a round of oral steroids last week, don’t think it did squat.  Eyes hurt – but that could be allergies – Random nerve pain to ears, hands, or any other part of my body.  I work in air conditioning, I live in air conditioning, and now I am on vacation with the energy of a slug.  or a slugs grandmother.   Have I bitched long enough?  I did get a parking pass – why not? My left pelvis gets locked on forward.  I am doing some physio therapy for leg weakness and core strength.  Should have done this ages ago, but didn’t realize how weak it was?  I haven’t had any new lesions since the first year – so if no new lesions, you think no new symptoms, or no body acting like it has ms right?  I have been reading about the remyliating experiments – I think they, along with stem cell transplants, cause they have these younger cells that help remyelating , are going to be the treatment of the future , more so than the ccvi, whatever.  Plus  I hate to tell my partner all my symptoms, cause then I feel like I am being a winer…which I am right now, then I am done, moving forward – have to use that mindfulness theory – tell my body to get with the program, don’t deny the symptoms, but don’t let them control your life -hense the I have ms but it doesn’t have me slogan.  I am not letting it take me over, I just need to be sensible, patient, maintain my sense of humour and have reasonable expectations of my day.

So, the sun is shining, and it is a beautiful day.  Partner is off at an event, and I am catching up on Coronation Street, enjoying morning coffee and sitting with Doug (pug).  Hopefully we will get out for a boat ride today – or at least to a beach where I will float in cool water, and Chris can fish , oops, if I am floating, will I scare away the fish??

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