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October 16th 2016 

Thanksgiving is followed by the Cranberry Festival in our part of the world and of course tied into the beauty of the fall colours.  This weekend my daughter brought her beau up to see the part of the province where she grew up, and Chris’ daughters came up for a visit.

My MS is slowly returning from a round of steroids, I gotta say it was amazing, I had energy, my brain was clear, and I felt – normal, I can understand now why some promote the use of a low steroid program for combating inflammation, it felt better than any combination of meds.   I still believe a diet of non inflammatory food is important, along with exercise, and a positive attitude and a healthy lifestyle overall is key.  MS is so unique to each person, and while I am in the RRMS group, and we have some common elements, how it plays out in our daily living is different.

We were very fortunate to be able to purchase a boat this summer, and living where we do, it has enriched our lives – mine and my partner Chris’ to be able to enjoy our lakes.  I am sharing some pictures of our travels.

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Winter

Still learning how to use WordPress, my phone, Adobe, and my laptop.  I think I need a manual or 10.  Maybe when I retire at 70 or so, I can go back to school. (smiling)

Since it was not too cold, I took my iPhone on a walk with Peanut.  Peanut was tethered to me at my waist, so I had both hands free for picture taking and overall balance while walking.  Worked great until a loud car came by that she wanted to chase while I wanted to take a picture.  Focus!

MS and weather extremes do not do well together.  Actually, I don’t think weather extremes do well for anyone.  Last week was a little more challenging, perhaps it is the El- Nino affect influencing our weather system and adding more extreme ranges to the barometric pressure.  I did not have a head migraine, but I think rather a body migraine, if that makes sense. I love the whiteness of the snow as it hangs on the trees, it is so peaceful and quiet.  If I won the lottery I think I would go to Arizona for a good chunk of the winter though.  Somewhere dry and sunny and warm.

MS and depression: I have had depression for a long time.  I have always thought I think of my life as a glass half full, rather than half empty and a good sense of humour.  MS diagnosis was in January of 2011.  Lately though my sense of happiness has been….flat lined a bit and I knew something was going on, but sometimes it is the people around you who also notice and speak up.  I went to the doc and am going to try a different anti-depressant.  I will continue to do all the other important stuff that one should do, ie exercise, fresh air, eat well, blog, play with the puppy., but sometimes the meds need adjustments.  Going to neurologist this week for my MS checkup, and will see what he has to say.  Definitely need to get out my tips for staying in the moment.  I know it is mid January, need more sunshine, and all that stuff, but in the meantime, cranking up the woodstove for some lovely warmth.

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Humour button? I know where mine is, where is yours??

Do you ever get the feeling, that you want to be silly, but you know you should probably be alone when you do it??  I think it comes from being in a tired happy place.  Now yesterday, my happy button got pushed when we were out snow shoeing, the sun was shining, I was with people I love,  (it was an event with my co workers) out in the forest, putting one foot in front of the other and just loving it so much it made me laugh with joy.  I was not worried about getting to the end of the trail, or the look out, just enjoying the moment.  Breathing ( I still could), lifting my left leg, uhuh, then my right leg, yep, and the polls and my arms, uhuh, still working….and the joy of knowing,….I was not going any further, and that was okay too.  We were at Arrowhead Provincial Park on Family Day Long Weekend (Family Day is the 17th of February), and lots of other families were out taking advantage of the mild- -8C weather, and the sunshine -where you can feel the heat.  Another cool thing they have is ice skating on a river -lit up at night with braziers -next year for sure – but I can imagine what it will be like, especially with the full moon and stars out!!!

Today, is a different day, muscles are happily tired, and body is saying to take it easy and stretch out those muscles that you used walking up the tubing hill -no tow rope, just sheer tenacity to get up the hill. Especially since no one else is going to do it! 🙂

A gentle Saturday -and more wintery bird watching

Today, was a lovely day, bit of this bit of that.  Used the hand operated meat grinder that my mom gave me, think it may have been her own mom’s, to grind up left over roast beef and make a sheppards pie with -potato puffs on top -little different, but my man is not fond of mashed potatoes, so we tried an alternate.

It got all the way up to 0 C today, still got some snow, had to shovel the deck a couple of times, but it only took a couple of logs to keep the house nice and toasty.

The migraine, nerve pain, headache, eye ache thing that has been plaguing me for a week, was tolerable today, I read that a side affect of copaxone can be eye issues, but the weather pressure had been up and down, colds coming and going, so I don’t want to blame it on MS, but I know I have had this before, and it will go away, hopefully sooner rather than later.

I could have gone to the gym, but it is nice to be at home, putter about, doing this and that, being cozy, keeping the fire going, making chocolate chewies for dessert, trying to take pictures of the birds at the feeder.  Our friends the woodpeckers were also about, and the BlueJays abound, 6 or so, mostly at the feeder at the front of the house with the big seeds.  Apparently they like peanuts as well.  I like the little chickadees and nut hatchers I think they are called.

Also spent a bit of time reading, Lars Kepler -The Fire Witness – done with their usual attention to detail, a very enjoyable read, kept me on my toes, and the ending was not anything I expected at all.  Like Eilzabeth George, they spend some time building the story at the beginning, and weaving a lovely tale that keeps you thinking and waiting for the next page.

I also started The Mindfulness Solution -Everyday Practices for Everyday Problems – to supplement my reading -there are also some guided meditations to download – I got the ebook.  It has been around for a few years, but Ronald D. Siegel, PsyD ‘s books were suggested in my course, and my curiosity is still fresh and it is making sense when I read it.  Keep trying!!

OOh, popcorn time!!!!  Have a good one.

little bird at feeder

Not sure what kind of bird?

Shovelling the Deck! Hey I can do this!!

wood deck clear of snow

shovelled!!

Wow!!!  Got up this morning, after shooing myself out of bed, to get the Pillsbury Cinnamon rolls in the oven, I know, took the short cut, but they are good!!!  Reheated the leftover cooked coffee made from overground coffee beans, that clogged up the coffee maker, but it tasted good, and wow!! got me moving!!  Watched Iron Man 3 – again – what a great movie, with awesome music, had to put on the surround sound for that.

Anyway, the morning tasks were to clean up the clogged pathways full of branches, fill up the woodbox, do the dishes and clear the front deck, not in any particular order.  You can’t see where the ground is – another 24 inches below the deck, but with the warmer weather 0C, the snow is coming off the steel roof,  and landing on the deck – makes for a messy icy pile to clean up.  So, rather than going to the gym – cleaned off the deck.  I can’t complain – it isn’t a huge deck – and my sweetie does the rest with the snowblower, or ATV , which was a messy job of mush today.

Afterwards enjoyed sitting and watching the chickadees and bluejays at the bird feeder, I think maybe a hot chocolate is in order!!  I am grateful for our woodstove – such a warm heat on a damp day!!

December 30, 2013

Whew! for a day off it sure was busy!!  Started the day with a healthy hemp smoothie with orange juice, blueberries, pineapple and hemp stuff, made a lovely coffee to follow.  Hmmm, got the turkey soup in the slow cooker, did a 40 minute mindfulness yoga, tidied up, dusted, brought in the garbage and recycling containers.  Of course all these tasks took place over the course of the day, yoga was lovely with the sunshine pouring in the windows.  Did the dishes.  Tried to make a surprise for my fella, but honestly, technology was not my friend today, so we will just have to see how it all turns out. 🙂

Watched a wee bit of TV, but not much, John Carter Movie, am going to have to watch it AGAIN, for the 3rd time, without distractions or Facebook.  Did not bring in more wood, which given that it did not get above -11 C, might be a good idea, but I am pooped!!

 

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Written from the heart, this is the unadulterated truth of live with multiple chronic illnesses and being housebound. My life open for you to follow. Please join me