Everyday Living with MS

My Fitbit alarm vibrates on my arm at 630 am.  This works way better than Chris tugging on my toes or Peanut giving me a nudge with her wet nose.  My Fitbit tells me I get an average of 5 hours solid sleep.  I don’t pay attention to tingles in my feet, or minor muscle spasms that come and go anymore- not going to lose anymore sleep than I have to.  I can hit the shower and be at work in half an hour – as long as my keys are where they are supposed to be and I can find my phone – otherwise…..

I never know whether or not I will have a headache-either migraine, eye pain nerve pain on one side of my face , twitches or nothing.  Really you can pick a symptom -fatigue, blurry vision, difficulty getting the right words from my brain to my mouth, balance, it is a crap shoot – the trick is not to get hung up on it – excessive emotional reactions, either really happy or balling my eyes out – the list goes on, but as long as I don’t get stuck , I can be a cheerful person , enjoy going to work, gym, reading, motorcycle rides and boating.

Now this spring we have had a serious lack of sunshine, and a surplus of rain.  Urg – thankfully I love to read and have Peanut and Chris to snuggle with.

So living with a chronic illness is doable-focus on the living part and finding what interest gets you going and go!

Now if it’s the weekend – that’s a different story altogether!

One comment

  1. Awesome that you keep a good outlook on life ! My Grandson was the youngest person ever diagnosed with MS when he was 4 . He couldn’t move anything but his eyes it was a very scary time for everyone but Sick kids were amazing and from him they now can diagnose baby’s ! Kyle Wallace my Grandson is now 23 and lost his sight at 12 but that never stopped him either ! He has travelled and been on the radio and talked about MS at Schools etc . He is a goalie in hockey and loves it and yes he’s completely blind . You can do so much don’t let it control you your in charge ❤


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