Everyday Living with MS

My Fitbit alarm vibrates on my arm at 630 am.  This works way better than Chris tugging on my toes or Peanut giving me a nudge with her wet nose.  My Fitbit tells me I get an average of 5 hours solid sleep.  I don’t pay attention to tingles in my feet, or minor muscle spasms that come and go anymore- not going to lose anymore sleep than I have to.  I can hit the shower and be at work in half an hour – as long as my keys are where they are supposed to be and I can find my phone – otherwise…..

I never know whether or not I will have a headache-either migraine, eye pain nerve pain on one side of my face , twitches or nothing.  Really you can pick a symptom -fatigue, blurry vision, difficulty getting the right words from my brain to my mouth, balance, it is a crap shoot – the trick is not to get hung up on it – excessive emotional reactions, either really happy or balling my eyes out – the list goes on, but as long as I don’t get stuck , I can be a cheerful person , enjoy going to work, gym, reading, motorcycle rides and boating.

Now this spring we have had a serious lack of sunshine, and a surplus of rain.  Urg – thankfully I love to read and have Peanut and Chris to snuggle with.

So living with a chronic illness is doable-focus on the living part and finding what interest gets you going and go!

Now if it’s the weekend – that’s a different story altogether!

By Sarah Lomas

I have my eyes wide open to catch all my dreams. MSWarrior! Widowed and then some, proud mom of two fantastic kids. Wear two hearing aids and primarily lip read. Always looking for new things to to try.

One reply on “Everyday Living with MS”

Awesome that you keep a good outlook on life ! My Grandson was the youngest person ever diagnosed with MS when he was 4 . He couldn’t move anything but his eyes it was a very scary time for everyone but Sick kids were amazing and from him they now can diagnose baby’s ! Kyle Wallace my Grandson is now 23 and lost his sight at 12 but that never stopped him either ! He has travelled and been on the radio and talked about MS at Schools etc . He is a goalie in hockey and loves it and yes he’s completely blind . You can do so much don’t let it control you your in charge ❤


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