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MS JOURNAL

December 2019

Hard to believe – the end of a decade – so looking forward to the next decade – what would I like to see ?

It’s taken most of the decade to figure out how to live with MS – so hopefully this decade I can do better – live better and get the most out of everyday.

Now if you have MS or a different immune disorder you know that every day is a crap shoot – first step – make sure your funny bone is working cause without it you’re f**d.

Currently my funny bone is a little brittle – but I have faith that I can make it more pliable 🙂

I am beyond excited and feel really amazed to be accepted into the Lions Foundation Hearing Guide Dog program – currently on the waiting list.

I have always had family or friends around me to help with the basics of living in a hearing world. Alarms to wake up, hearing a kettle whistle, timer on a stove, know when someone is speaking to me, someone walking up behind me, fire alarm, carbon monoxide alarm. Life safety and communication.

It is very challenging to explain to a hearing person the daily struggles and fatigue it causes when I can’t hear or alternatively can’t see you to hear. I primarily lip read and my hearing aids provide sound to go along with the shapes a persons mouth makes.

The opportunity to have a hearing guide dog to help me is such an emotional boost, you have no idea.

Years ago I would never have asked for accommodation for my hearing – it just wasn’t really done, plus I managed – but having MS fatigue and hearing fatigue together put my ability to have a decent quality of work life very challenging. It is still a work in progress.

I have worked at the same company for 15 years – and I had the opportunity to work in a different department for a couple of years-felt so much better ! But there were a number of hearing related issues along with physical issues that were absent – so it really does make a difference if your workplace will accommodate you and if they won’t – well we now have legislation to help out.

By Sarah Lomas

I have my eyes wide open to catch all my dreams. MSWarrior! Widowed and then some, proud mom of two fantastic kids. Wear two hearing aids and primarily lip read. Always looking for new things to to try.

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